Welcome to Oklahoma Rare
Oklahoma Rare is a community-driven organization created by and for those impacted by rare diseases. With more than 395,000 Oklahomans living with a rare condition, too many families face long diagnostic journeys, limited treatment options, and barriers to care and support. Rare diseases are often isolating, and resources can feel scattered or out of reach.
That’s why Oklahoma Rare exists - to bring our community together, share resources, amplify voices, and create opportunities for connection and advocacy. By uniting rare families, we ensure that no one has to face the challenges of rare disease alone.
Oklahoma Rare's Mission
Our mission is to unite Oklahoma’s rare disease community, strengthen access to resources, and champion policies that improve the lives of individuals and families impacted by rare conditions.
Upcoming Events
Check back for events soon!
Proudly Connected
Oklahoma Rare is part of a larger movement to strengthen and amplify rare disease voices- working together to build equity, share resources, and advocate for the rare disease community locally and globally.
